For Neuro Note 4, I chose to watch Beth Malone’s
Ted Talk, How My Dad’s Dementia Changed my
Idea of Death (and Life). I chose this Ted Talk because
we recently covered this topic in my Neurological Aspects of Occupational
Therapy class. This topic is also close to my heart because my grandfather has
early/middle stage Dementia due to Parkinson’s disease. I thought this
video would be interesting when I read the title, but what I did not know is
how much I would actually relate to what Beth Malone had to say.
Beth starts off this TED Talk with a statement that can only
be described as morbid. She says, “ I am going to kill my
dad.” To someone who has never witnessed the reality of this
condition, this seems unthinkable, but to someone watching this condition take
hold of their loved one, it may seem like the only practical way out. Beth Malone's father was diagnosed with Frontotemporal lobe Dementia at the age of 65. In her
talk, Beth describes the harsh realities of Dementia. Having to move her father
from his house to a nursing home, watching his personality change, and watching
his physical and mental states decline, these things not only take a toll on
the individual diagnosed, but on the loved ones that care for them.
While my grandfather’s case of dementia is
quite different to that of Beth’s dad, I can relate, in a
sense, to her thought process. It is unbelievably hard to watch someone that
you have seen as a strong caretaker, slowly turn into someone who is fragile
and needs to be taken care of. Like I said previously, not only does this
condition affect the client, but it affects the family as well.
Another thing that Beth talks about in this video is the
importance of death preparation and education. Death is not necessarily a fun topic, but it
is something that needs to be talked about. In the video, Beth talks about how
her family discusses her father’s death frequently after his diagnoses. She
also mentions how her family was not prepared, and how she wished they had
talked about death when everyone was healthy. This is just another reason why
educating and preparing the family and caregivers is so important.
From an Occupational therapy perspective, I think this is
why it is not only important to take care of your client, but also to take care of
their family as well. While we need to educate our clients and make sure adaptive equipment and other
resources are available, we also need to be sure that the
caretakers and family are educated on the condition. When a client is diagnosed
with a condition of this nature, it is so important that their loved ones be
prepared for what the condition looks like and what the future of the client
may hold.
In the case of my grandfather, I am so thankful that he has
made his final wishes known. He is currently in the middle stages of Parkinson's disease, but has made sure he has everything written down and in order before
his condition progresses, even down to the songs he wants to be played at his service. My grandfather was a medical doctor who practiced
general medicine in our little community for 50+ years. When he realized he had
Parkinson’s disease, he made sure that everyone in our family knew
what the future held and was prepared for it. I believe that because of this,
it has made his diagnoses just a little bit easier to cope with, especially for
my grandmother and his children.
Overall, I think this TED Talk did a great job of explaining
the harsh realities of dementia and what families dealing with this diagnosis may go through. Beth Malone did a great job sharing her story
and relating it back to a topic that is so important, death education and preperation. I would recommend
this video to all future OT practitioners. This video is a great example of how
important it is to empathetic towards our clients and their families, as well as how important client/caregiver education is. Diagnoses such as Dementia are hard for everyone, especially the
client and their families. This is why it is so important that we as practitioners
do everything we can to help them process it and prepare for the future.
References:
Malone, B. (n.d.). How My Dad's Dementia
Changed My Idea of Death (and Life). Retrieved from
https://www.ted.com/talks/beth_malone_how_my_dad_s_dementia_changed_my_idea_of_death_and_life/up-next#t-233447